We have had a few scary days :( This last couple of weeks I noticed Christian's head seemed bigger and his soft spot seemed to be getting larger. He had a appt on the 25th so I just waited till then. Since he was acting OK, he was playing and cooing and eating OK. His pediatrician confirmed my suspicion his head had increased a little over 2 inches with in a month and his soft spot was big. So off to Children's ER I went w/ him as that is were the neurosurgeon' s told us to go. Upon arrival they immediately got him into radiology. After that with an hour he was having emergency Surgery. His Shunt was malfunctioned and his ventricles were so swollen his eyes wasn't looking upward (an indication serious) They said there was no way they could wait as if they did all the fluid build up could push his brain out and Kill him. That they had to take him in right away. I was terrified and didn't know what to do. James was trying to get there. I was all alone and so scared. Finally after waiting for over an hour the surgeon came out and said surgery went great. The tubing that was in the brain ventricles was clogged. They replaced it w/ new tubing and sent the old one off for pathology report. After 2 hours we finally got to go back in recovery by that time James arrived. We were in recovery for 4 hours b/c he had a rough start after surgery w/ bad heart rate drops and his eyes were leaning to the sides. Finally he started doing great and was moved to the floor and did great over night and the following morning and evening and was sent home. We are now home and resting. I am so glad I took him when I did, I just wish I would of took him sooner but he was acting OK and normal. I feel horrible b/c I think of what could of happened if I hadn't taken him in. I know I shouldn't feel that way but can't help it. Please keep Christian in your thoughts for a fast recovery. They said he was OK to come home but I am terrified now, He's still sluggish on his feeds but he still so happy and playing (when he has Tylenol for the pain LOL) He has just amazed me so much...He sure is one tough Cookie!
Hope Everyone has a Great Thanksgiving, We will be spending it home as we don't want to get Christian out so soon after Surgery. One thing I'll be thankful for is my Baby Christian :)
Wednesday, November 26, 2008
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1 comment:
What a nightmare, Jessica!!! But being a Mom of 8, you HAVE to know that you can't rush your kids to the hospital everytime something seems a little off. LOL You'd never leave there!!!
I'm glad to hear Christian is doing much better. I hope you still got to eat lots of turkey for Thanksgiving!
Joanne
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